Empowering the Patient – Ataxia Aware
Author: Ataxia Support
The Carers Perspective: Karl Treharne
Karl Treharne
Be Part of Something Powerful
Rare QoL
Cerebellar Ataxia
Cerebellar Ataxia Ataxia is a Greek word for “Lack of Order”. Our mission is to bring some order with Ataxia awareness. As part of the Ataxia Aware project we are sharing personal accounts of those with Ataxia or other rare conditions. We want to provide a safe space for people to talk about their experience […]
Ataxia Only Joking!
Ataxia Only Joking!
Refsum Disease
Refsum Disease – One in a Million: Kirstie DeMarco Ataxia is a Greek word for “Lack of Order”. Our mission is to bring some order with Ataxia awareness. As part of the Ataxia Aware project we are sharing personal accounts of those with Ataxia or other rare conditions. We want to provide a safe space […]
International Ataxia Awareness Day and What is Ataxia?
International Ataxia Awareness Day (IAAD) is on September 25 of each year. It is a coordinated effort from individuals and Ataxia organisations around the world to help shed light on this rare disease. Ataxia could be the most serious condition you have never heard of.
Megan’s Journey: eSCAping Type 1
Hi, I’m Meg – a 31 year old with a rare disease called Spinocerebellar Ataxia – Type 1.
Living with Lipodystrophy by Becky Smith
Blog author, Becky Smith, writes about her personal experience with Lipodystrophy.
Ataxia has NO Borders
Our founder Alan Thomas (@ataxiaandme) met with John “JC” Colyer at the 9/11 memorial in New Jersey. It was a moving experience in a very emotional place.